Human Research Protections in

Demographic Research and the Social Sciences

April 30, 2003

Population Association of America Annual Meeting

Hilton, Minneapolis

I.  Introduction and Framing the Mini-Course

8:00     Coffee

8:30     Opening Comments -Virginia Cain

II.  Understanding Ethical Guidance and Key Concepts and in Human Subjects Protection 

8:35     A. Overview of Ethical Underpinnings of Human Research Protections and Federal Regulations - George Pospisil

B. Key Concepts in Human Research Protections - Sally Hillsman

III.  Emerging Issues in Human Research Protections

9: 15    A.  The Health Insurance Portability and Accountability Act (HIPAA) and Research -  Linda Adair        

B.     Third Parties in Research - Virginia Cain

IV.  Applying Human Research Protections in Demographic Research

10:00   A.  International Research - Linda Adair

B.     Surveys - Cross-sectional and Longitudinal  -  Virginia Cain

                        C.  Use of Extant Data - Sally Hillsman

10:45   Break

V.  Comprehending the IRB Process and the Role of Review

11:00   Oversight of Social and Behavioral Research - George Pospisil

VI.  Overview and Discussion of Issues in a Major Demographic Study

11:15   Ethical Issues related to the National Longitudinal Survey of Adolescent Health - Linda Adair

VII.  Final Comments, Questions, and Wrap Up - Sally Hillsman