Human Research Protections in Education Research 

April 21, 2003

 

Participant Notebooks

Table of Contents

 

 

I.      Agenda

 

II.    Ethical Standards of ASA

 

III.  Understanding Key Concepts and Ethical Guidance in Human Subjects Protection 

  • Presentation: Overview of Ethical Underpinnings of Human Research Protections and Federal Regulations - Ivor A. Pritchard
  • The Belmont Report
  • Declaration of Helsinki
  • The Nuremberg Code

 

IV.    Federal Guidance

  • Code of Federal Regulations
  • Human Subject Regulations Decision Charts
  • Expedited Review Categories

 

V.     Key Concepts in Human Research Protections

  • Presentation: Informed Consent - Margaret LeCompte
    • Informed Consent Checklist
    • Tips on Informed Consent
    • Sample Informed Consent Form
    • Methods for Conveying Consent
  • Presentation: Risk/Benefit Analysis - Dick T. Campbell
    • Issues in Risk and Harm: Recommendations of the National Human Research Protections Advisory Committee
    • Summary of Types of Harm and Ameliorative Measures
  • Presentation: Confidentiality - Felice J. Levine
    • Issues in Confidentiality: Recommendations of the National Human Research Protections Advisory Committee

 

VI.   Putting Human Research Protections into Practice in Education Research

  • Presentation: When to Apply Exempt and Expedited Review -  Ivor A. Pritchard
    • Searching for Research Involving Human Subjects - Ivor Pritchard
  • Presentation: Involving Vulnerable Populations (students with disabilities, language-minority students, undocumented students) -  Margaret LeCompte
  • Presentation: Approaching Research for Different Purposes (basic, policy, evaluation, research on students) -  Richard T. Campbell

 

VII.  Comprehending the IRB Process and the Role of Review

  • Presentation: IRB Process from the Investigator Perspective -  Felice J. Levine
  • Presentation: Interacting with IRBs from the IRB Perspective - Lizanne DeStefano       

 

VIII.  Selected Readings

  • Ethics in Educational Research, K. R. Howe & M. Moses
  • Ethical Issues in Teacher Research, F. M. Hammack
  • Travelers and Trolls: Practitioner Research and Institutional Review Boards, I. A. Pritchard
  • Referring and Reporting Research Participants at Risk: View from Urban Adolescents, C. B. Fisher et. Al
  • Informed Consent and Survey Response: A Summary of the Empirical Literature, E. Singer
  • Privacy and Confidentiality, S. Folkman
  • Confidentiality Assurances and Response: A Quantitative Review of the Experimental Literature, E. Singer, D. R. Von Thurn, & E. R. Miller
  • Deception Research, J. Sieber
  • Ethical Challenges in Community-Based Research, P. A. Marshall & C. Rotimi
  • Issues in Accessing and Sharing Confidential Survey and Social Science Data, V. A. deWolf
  • The Institutional Review Board:  Its Origins, Purpose, Function, and Future, C. R. McCarthy